Journal Article


Reaching consensus on reporting Patient and Public Involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines

Abstract

Introduction. Patient and Public Involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used to develop and gain consensus on guidelines for reporting PPI in research studies (GRIPP2). Methods. There were three key stages in the development of GRIPP2: identification of key items for the guideline from systematic review evidence of the impact of PPI on health research and health services; a three phase online Delphi survey with a diverse sample of experts in PPI to gain consensus on included items; and a face to face consensus meeting to finalise and reach definitive agreement on GRIPP2. Challenges and lessons learnt during the development of the reporting guidelines are reported. Discussion. The process of reaching consensus is vital within the development of guidelines and policy directions, although debate around how best to reach consensus is still needed. This paper discusses the critical stages of consensus development as applied to the development of consensus for GRIPP2, and discusses the benefits and challenges of consensus development.

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Authors

Brett, Jo
Staniszewska, Sophie
Simera, Iveta
Seers, Kate
Mockford, Carole
Goodlad, Susan
Altman, Doug
Moher, David
Barber, Rosemary
Denegri, Simon
Entwistle, Andrew Robert
Littlejohns, Peter
Morris, Christopher
Suleman, Rashida
Thomas, Victoria
Tysall, Colin

Oxford Brookes departments

Faculty of Health and Life Sciences

Dates

Year of publication: 2017
Date of RADAR deposit: 2017-10-12


Creative Commons License This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License


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This RADAR resource is the Version of Record of Reaching consensus on reporting Patient and Public Involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines
This RADAR resource is the Version of Record of Reaching consensus on reporting Patient and Public Involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines

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