Background: Previous studies indicate that approximately a quarter of men with testicular cancer will opt for a testicular prosthesis for reasons including concerns over body image, future relationships and appearance. However, little is known about UK health care professionals’ practices and views in terms of how and at what point a prosthesis is discussed with patients. Men’s views have also received relatively little attention. This study aims to explore men’s experiences and views regarding prosthesis and to explore current practice and views among UK health professionals who care for men with testicular cancer. Methods: A mixed methods design will be employed. A postal survey will be sent to approximately 500 testicular cancer patients using the Thames Valley germ cell database, including those who have a prosthesis and those without. The survey will also be promoted via targeted social media to maximise recruitment. The survey will assess quality of life after testicular cancer including impact on sexual relationships, body image, wellbeing, decision regret and views towards prosthesis. An online survey of approximately 240 surgeons, oncologists and nurses who would normally discuss prostheses with testicular cancer patients will also be conducted. A sub-sample of survey respondents (men and health professionals) will be invited to participate in an in-depth telephone interview to generate a deeper understanding of the topic. Interview data will be analysed using Thematic Analysis. Results: The study is currently undergoing ethical review. Recruitment is planned to commence in April 2020. Conclusions: Findings will inform how support and information given to testicular cancer patients regarding prosthesis could be optimised in the future. In particular, findings will inform ways of helping men decide whether or not to have a prosthesis, such as a decision aid. The study is funded by Urology Cancer Research and Education (UCARE) charity.
Matheson, LaurenProtheroe, AndrewDavey, ZoeRedgewell, JackyHarcourt, DianaLewis-Smith, HelenaTuthill, MarkSullivan, MarkWatson, Eila
Department of Nursing
Year: 2021