Journal Article

Evaluating the 'return on patient engagement initiatives' in medicines research and development: A literature review


Search strategy and inclusion criteria. We undertook a scoping literature review using a systematic search, including academic and grey literature with a focus on evaluation approaches or outcomes associated with patient engagement. No date limits were applied other than a cut-off of publications after July 2018. Data extraction and synthesis. Data were extracted from 91 publications, coded and thematically analysed. Main results. A total of 18 benefits and 5 costs of patient engagement were identified, mapped with 28 possible indicators for their evaluation. Several quantitative and qualitative methods were found for evaluation of benefits and costs of patient engagement. Discussion and conclusions. Currently available indicators and methods are of some use in measuring impact but are not sufficient to understand the pathway to impact, nor whether interaction between researchers and patients leads to change. We suggest that the impacts of patient engagement can best be determined not by applying single indicators, but a coherent set of measures.

Attached files


Vat, Lidewij Eva
Finlay, Teresa
Schuitmaker-Warnaar, Tjerk Jan
Fahy, Nick
Robinson, Paul
Diaz, Ana
Ferrer, Elisa
Hivert, Virginie
Purman, Gabor
Kurzinger, Marie-Laure
Kroes, Robert A.
Hey, Claudia
Broerse, Jacqueline E.W.

Oxford Brookes departments

Oxford School of Nursing and Midwifery


Year of publication: 2019
Date of RADAR deposit: 2019-09-10

Creative Commons License This work is licensed under a Creative Commons Attribution 4.0 International License

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